It’s been since July, 2021 that I have published anything on my blog. For decades, writing was my “go to” self-therapy. But, things changed, and I do mean “changed” in 2021. I’m now sixty-six years old and not only a grandmother, but a great-grandmother. It’s a comfort to know that the circle of life will continue as we pass into eternal life. A life that is secured in Jesus Christ, my personal Savior. But, becoming a great-grandmother four months ago was just one change…The biggest changes have been in the mental health of my parents, my physical and emotional health, and that of my husband’s physical health. I guess it “all” comes with aging., but it can be overwhelming at times…
Where do I begin? First, I am an only child, so the decisions I make regarding my parents fall squarely on my shoulders. Some would say that is a blessing, but as the old adage says, “It can be lonely at the top of the decision ladder.” And, I’ve been living on the top rudder for over sixteen months. All I can say is that when you are thrown into an arena that involves both of your parents being diagnosed with dementia and Alzheimer’s, you better hold onto your hat because you are going on a long, bumpy ride…And, your heart will break into as you watch your parent’s once charmed, adventurous lives settle into a memory unit with security bars on the doors and an iron fence around the outside garden. Yes, they are there for their protection, but it’s still hard to accept.
My parents were as active as anyone I personally know. Several years ago, they owned a Coachman motorhome and traveled for weeks at a time. There are dozens of photo albums showing their trips and all the people they encountered and many that they made friends with. They also had a nice lake lot with a camper where they enjoyed going on the weekends. My Dad was a man who couldn’t sit still. He had to be up and doing something right up to the day he collapsed with an “altered mental status breakdown” at the age of eighty-five.
I had seen my Dad declining in his cognitive abilities for pretty close to a year. They were subtle at first but suddenly accelerated within a few weeks. For over three years, he had been dealing with my mother’s memory absences and changed behaviors. She could be as nice of a person you would want to meet one minute and then become agitated and aggressive the next. My Dad would enlist my help but it would only upset my mother more and more as she become more and more territorial. Sadly, I became a “trigger” for her mood swings that would end in her yelling for me to “get out of her house!” My Dad would stand and cry as I tried to reassure my mother that I was NOT trying to take over her life or her home. But, she could only see that her abilities were decreasing and my Dad was leaning more and more on asking me for help.
It finally got to him. He simply collapsed and loss all awareness of who he was. He ended up staying in the hospital for two weeks and then sent to a skilled nursing home for rehab. It would have been wonderful if I could have sent him back home with my mother had the chain of events not been so drastic that both of my parents ended up in memory care.
The hospitalization of my dad caused my mother to simply “flip out.” She couldn’t understand or comprehend what was happening to him, so she concluded that “I” had come up with an elaborate scheme to break up their marriage and steal their possessions. She called 911 three times wanting me and my husband arrested. She even called 911 while my Dad was in the hospital saying that I had kidnapped him, and at one point she told the police that he was lost in the woods behind their house. For reasons far beyond my reasoning, my mother convinced one of my Dad’s sisters that I was endangering their lives and keeping the family from seeing my Dad. To this day, the aunt still believes that I purposely kept her away from her brother…Nothing could be further from the truth…There was a little thing known as “Covid” going around as well as the fact that the doctor ordered my Dad to have rest and no visitors. (This is another story in itself…)
The police encouraged me to seek immediate medical treatment for my mother. My husband and I were trying our best to stay with her night and day, but it was quickly becoming more than either one of us could handle. My mother began calling the hospital numerous times a day demanding to speak with the head nurses and using words of profanity that Hitler probably never used! The nursing director called and assured me that my mother needed intervention treatment as soon as possible. Since I was listed on their HIPPA the hospital would only deal with me from that point forward. My mother became enraged. At 3:15 AM, I sent a text to her PCP and neurologist that she needed to be seen right away. Our beloved PCP called me first thing the following morning to set up an appointment for that day. That afternoon, I drove my mother to a beautiful memory care facility, paid the first month’s fees, and convinced my mom that she was there to see my Dad. Yes, I lied. Yes, I misled her. And, yes, I had family members (their siblings once again!) think the absolute worse of me for misleading my mother. But, the PCP (primary care physician), the memory care staff nurse, the memory care director, the police department, and oh yes…Adult Protective Services would graciously beg the difference with those particular family members! Our PCP said that my mother could easily hurt herself, get lost, and even try to act out on her suspicions and hallucinations. . I had definitely entered into a different world where my parents were concerned. Nothing would ever be the same again.
After admitting my mother into memory care services, I was faced with my father’s situation in the nursing home. It was time for him to be discharged, but he could not be left alone and would need around the clock care as well. So, it was back to the memory care facility. They graciously offered a double room for both of my parents. Within three weeks, both of my parents were now living full time in memory care. That left me being suddenly inundated with managing their home, barn, land, personal possessions, and financial resources…With absolutely no prior arrangements except that my Dad had made me Power of Attorney three years prior, had added me to their personal checking accounts, and instructed me that he did not want to ever sell their home.
While my Dad was in the hospital he lost his billfold that contained his driver’s license (which he would no longer need), credit cards, and social security cards. I spent the next three months after he moved to memory care trying to replace them. When a new set of Medicare cards arrived, I took them to the memory care unit not realizing that he would loose them again within the next week! It seemed that what was once up was now down and what was down was now up! The journey continued…
To be continued!
This Too Shall Pass (but it could take a while!)
Lin T. Rollins, M.Ed.
Author – BreakAwaybylintrollins